The organization's objectives include: Providing financial assistance to patients for the purchase of medications and medical equipment, Advocacy leading to the inclusion of medications and new treatments in the government's basket of subsidized drugs and health services, Gathering relevant information concerning the disease and disseminating it to patients and their families, Operating a website offering information on a broad array of topics relating to the disease, Organizing support groups for patients and their families, Convening yearly conferences including lectures by physicians and other specialists, Providing a framework for social interaction and mutual support and sponsoring social events for patients and their families.